teknolojiarsivi.com March 18, 2018

Charlie Gard: No agreement over where baby moved for final days

28 July 2017, 12:21 | Audrey Hill

Charlie Gard's parents decide terminally-ill son should spend his final days in a hospice

Charlie Gard's parents given until noon tomorrow to agree arrangements for his death

The 11-month-old child, widely known as Baby Charlie, will be transferred to a hospice arranged by the hospital if there is no agreement by the deadline, the broadcaster quoted the judge as saying.

Connie Yates and Chris Gard had asked to be allowed to to take their son home to die after ending their legal case.

Armstrong said the couple believes they can put a privately-funded nursing care plan in place, which would include some nurses from London's Great Ormond Street Hospital (GOSH), where Charlie is now being cared for. But the hospital "has suggested that he should be removed from life support within hours of being transferred to a hospice".

Charlie Gard's parents have been given until noon on Thursday to reach an agreement with Great Ormond Street Hospital on arrangements for his death.

He said on Wednesday that the time had come for a decision to be made.

Armstrong said Charlie's parents regarded that as only "a notch better" than the hospital.

Armstrong said hospital officials were placing obstacles in Charlie's parents' way.

The child suffers from mitochondrial depletion syndrome, a rare genetic disease, and can not breathe without help.

At the end of the hearing attended by Charlie's mother, Connie Yates, Francis said he felt a hospice, rather than the family home, would be best.

Doctors at Great Ormond Street opposed that, saying it would not help and could cause Charlie more suffering.

The baby will be moved to office in an institution specialized in the accompaniment of persons in end-of-life and treatment to preserve life will stop shortly after.

Judge Nicholas Francis, who has dealt with the emotionally draining case for months, said the sensitive issues cried out "for mediation" - not for the ruling of a judge. The hospital's lawyers demanded that a decision be made today, and have said that Gard should either stay at the hospital or die the same day he is admitted to hospice.

The couple had fought all the way to the European Court of Human Rights for permission to have their son treated, but were refused by judges at each step. His parents just on Monday announced they were giving up their legal fight against the hospital and their own government to obtain treatment. On July 17, Charlie was examined by USA neurologist who claimed that an experimental therapy could provide up to a 10 percent chance of improvement in the child's condition. His muscles deteriorating, Charlie has been kept alive on a ventilator in a London hospital.

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